|
UpdatesJune 24, 2008: Apologies for the lack of a recent update. Not much has changed. Alden is still not eating as much as he should and not gaining as much weight as he should. The good news is that Seri and Pete's insurance got upgraded and they are now able to visit CHOP (Children's Hospital of Philadelphia) to get an assessment there in July. May 9, 2008: Seri and Pete may be forced to go back to the original hopsital now since their insurance won't cover a new hospital. The original hospital was and likely still will be unable to correctly diagnose Alden's condition. April 22, 2008: Alden failed his feeding therapy. The therapist insists there is something wrong that the doctors are not diagnosing. If only the doctors would agree! There is no change in Alden's eating or general ability to keep things down. April 1, 2008: Seri and Pete are going to try a new medication for the next two weeks at the advice of their pediatrician. If it works, then they may be able to forgo the feeding tube option. March 26, 2008: The doctors are now recommending a feeding tube. This will hopefully allow Alden to get the necessary amount of food he needs per day. The bad news is that this means more co-pay's, required feeding therapy, and regular visits to their home by a nurse - all of which will be very costly. March 23, 2008: After several days of vomiting and diarrhea, Alden spent Easter weekend in the emergency room. The doctors were able to re-hydrate him using IV's. He is scheduled to go back for a follow-up visit this coming week. March 12, 2008: Alden was discharged after 17 days in the hospital. Diagnosis for now is severe acid reflux, slow-emptying stomach, severe milk allergy, and aortic hernia. |
